A follow up to my las Vlog about my skin reaction to my new drugs.
I called my doctor on Friday and explained all the problems with my skin, night sweats, etc. As part of the neurological team of specialists working with me, I have never experienced a doctor, let alone a specialist, drop everything to get on a 3-way call with his nurse and me to instruct me to reduce my meds immediately. It’s pretty scary since I’ve been on these meds for a year!
I was in the early stages of Stevens-Johnson syndrome and basically was chemically burning from the inside out and my organs were starting to shut down.. in a nutshell I was dying and days away from being hospitalized. The syndrome would’ve meant I would’ve been treated in the intensive care burn unit and would take months to recover! I describe the rash pain like when you scrape your knee, for example, it starts to heal but is tender to touch during the process. It’s the same feeling only the pain is from under the skin. It’s the weirdest thing. The human body is amazingly resilient and efficient. It was trying to get rid of all this chemical crap that was in my system.
The trick to this whole MS disease is the delicate balance of medication which changes and can easily be thrown out of whack. The hard part is that as soon as I feel good I don’t want that feeling to go away despite the side effects. I guess my balance has to be found in not enduring through the side effects. I’m not much of a complainer, but I’m gonna have to start writing some issues down.
Travel and events in the next year are already in full swing, contracts signed, staff to hire, etc. I need to be in medical healthy balance now more than ever! I hope this is the last hurdle I have to jump through.
I would say that’d be my Christmas miracle this year. Being with my whole family for the holidays has been awesome despite my medical scare. My family has completely fallen into abundance. Being around friends who share the same core values, interests and enjoy a good game of cards or pool 🎱 has been so fun. I’ve seen a whole different side of Canada and I’m going to see even more in the new year. I will definitely share that here.
Hope everyone is having a great week! Stay healthy, listen to your gut feelings and always love yourself and your life! Take care my friends ❤️
I’ve been sick lately which has forced me to slow down on a few time sensitive things such as poster and media, designs, target dates.. it was getting to be a bit much. I guess this cold is somewhat of a double edged sword.
I get a lot of questions about my dolls. I used to be really stand-off-ish with everyone because I really wasn’t confident in my work. Like most artists I know we are our own worst critic but it wasn’t until the last 3 years that I finally let go and embraced what I’ve learned and continue to learn about my craft.
For the next part of my journey I’ve decided to get a little more artsy fartsy. Now this won’t be just a road of making and selling dolls, I’ll be documenting more if my personal journey as an artist. So let’s begin tonight.
It’s 1:43am and I’m waiting for the paint to dry while watching Netflix on my iPad. The house is nice and quiet and there’s only one light coming from my desk lamp. It actually reminds me of my childhood. When I was in either grade 1 or 2, I loved the Disney version of Pinocchio. There was a picture of Geppetto working in his workshop at night looking up at the sky wishing for Pinocchio. Haha I guess it’s eerily very similar. This took s very strange turn. Maybe it’s the paint fumes 🤷🏻♀️
I can’t say how happy I am to finally be able to enjoy my artwork. I love what I do! I’ve been slowly building my doll collection, yes I’m probably going to be one of those women with a bunch of dolls. I did promise myself to not get crazy and go over 10 dolls in the entire house… ok well, I promised my boys.
It’s the beginning of the Christmas season and I can already hear the sound of crunch time. I have a few dolls to make before Christmas and few of my own I want to complete.
A couple of events happened over the last couple months that would’ve left me jaded about 5 years ago, but today is a very different day. I felt validated and self assured that I am on the right path. It’s funny what they say. When you feel adversity or opposition from others, it says a lot more about them than it does about you. I’ve learned that you do choose your future and things may look bleak but it must look that way temporarily in order to achieve what you deserve. 2018 is coming up fast and I am extremely excited! There will be lots of meetings, planning, coordinating, but my goal is worth it!
Let the Christmas songs, sweaters and Santa pictures begin! 🎄