A follow up to my las Vlog about my skin reaction to my new drugs.
I called my doctor on Friday and explained all the problems with my skin, night sweats, etc. As part of the neurological team of specialists working with me, I have never experienced a doctor, let alone a specialist, drop everything to get on a 3-way call with his nurse and me to instruct me to reduce my meds immediately. It’s pretty scary since I’ve been on these meds for a year!
I was in the early stages of Stevens-Johnson syndrome and basically was chemically burning from the inside out and my organs were starting to shut down.. in a nutshell I was dying and days away from being hospitalized. The syndrome would’ve meant I would’ve been treated in the intensive care burn unit and would take months to recover! I describe the rash pain like when you scrape your knee, for example, it starts to heal but is tender to touch during the process. It’s the same feeling only the pain is from under the skin. It’s the weirdest thing. The human body is amazingly resilient and efficient. It was trying to get rid of all this chemical crap that was in my system.
The trick to this whole MS disease is the delicate balance of medication which changes and can easily be thrown out of whack. The hard part is that as soon as I feel good I don’t want that feeling to go away despite the side effects. I guess my balance has to be found in not enduring through the side effects. I’m not much of a complainer, but I’m gonna have to start writing some issues down.
Travel and events in the next year are already in full swing, contracts signed, staff to hire, etc. I need to be in medical healthy balance now more than ever! I hope this is the last hurdle I have to jump through.
I would say that’d be my Christmas miracle this year. Being with my whole family for the holidays has been awesome despite my medical scare. My family has completely fallen into abundance. Being around friends who share the same core values, interests and enjoy a good game of cards or pool 🎱 has been so fun. I’ve seen a whole different side of Canada and I’m going to see even more in the new year. I will definitely share that here.
Hope everyone is having a great week! Stay healthy, listen to your gut feelings and always love yourself and your life! Take care my friends ❤️
Christmas is just 4 days away and although the holiday spirit is definitely in the air, the weather looks more like a gloomy Fall day. It’s been raining for the last few days which makes for a lot more lazy afternoons.
The kids are officially home for the next two weeks and although I like my quiet and space, I will enjoy hearing them laughing and playing for the next two weeks. It kind of feels like I’m on vacation too, the lil one doesn’t want to spend as much time with me when his brothers are home, so I guess I win! 🙂
I am a happy woman and so far 2016 looks like it’ll be full of even more fun and adventures! I can’t wait!
Much love to you all, my Sweets!
Here’s my most recent video:
#WhatIsLifeVlogs S1V5: Christmas Shopping Countdown
It’s midwinter and it’s unusually mild weather outside. Similar to a damp Spring day it has all us Canadians weather confused which leads to questioning everything from or clothing to what drink we want to start off our days. I spent most of the day putting laundry away, fixing beds, answering emails and setting my schedule for a busy upcoming weekend when the 12 Days of Christmas begins.
I must say I’ve had a very productive last week which allowed me to debut my new radio show successfully. I co-hosted my new show, Stils On The Grills, with Bishop Moonshine who was not only great to chat with but is extraordinarily funny. I’ve decided to do more than one show a week so I’m currently working on those. I felt so great being back on the mic, it felt a lot like coming home after such a long hiatus and completely changing my creative plans. I’m so excited about all the upcoming plans for all my various medias. I will also be uploading some new videos very soon so don’t forget to keep checking in with me for details!
It may be a very warm and strange winter so far, but Christmas is definitely in the air and I am so excited to get some Christmas crafts, baking and shopping done over the next couple of weeks!
I hope you are enjoying your week so far 🙂 much love to you all!
Click here for Stils On The Grills Episode 1
It’s Sunday and the week is officially over and I couldn’t be happier. I had an unusually productive week that lead to a relaxing weekend. I’ve been making my Christmas lists and planning out the colour scheme of this years Christmas. Being in the new house makes this year extra special and makes me more excited about all the holiday activities I have planned for the kids.
I’ve been editing and uploading new videos to my YouTube channel more regularly and I’m enjoying the routine. I’ve been working on some projects with my sons and we’ve all been having such a great time. My kids never cease to amaze me with their fabulous ideas, they inspire me every day!
I hope everyone has a fabulous day, much love to you all! 😉
Here are my most recent uploads:
Mixed Blind Bag Toy Review
#WhatIsLifeVlogs S1V3: It’s raining…Let’s buy stuff!
#WhatTheFace : 30-minutes-or-less Look
The Christmas shopping is complete and I’ve wrapped all my presents…of course I did manage to forget some key elements to my Christmas Eve dinner tomorrow.. but at least I did the most tedious stuff.
I love the Christmas holidays, despite some mixed emotions with the kids playing video games and listening to music at a nightclub level. I love decorating and making my tree as filled with eye candy as well as real candy. I did manage to miss my Aunt’s annual Christmas dinner. It kind of sucked but I’ve been fighting an awful cough and fever as well as taking care of my lil 2 year old with his cold. It’s been 24/7 Children’s Advil and Adult Advil dosages for me and the little one. I really hope he, at least, gets better for Christmas Eve and Christmas Day to enjoy his presents.
Spending some forced sick time in bed, I managed to think about my goals for the upcoming new year. I definitely need to see my twin in Texas and I’ve been thinking very seriously about searching for a new family member…
I’ll fill you in when I finally decide. 😉
I hope everyone else is having a great Holiday and that we all remember our fellow peeps who struggle around this time of year. I wish you all a very Merry Christmas!
Much love to you all 🙂
I found it important for me to clean out my mental and emotional state. Sorting through my relationships and really finding out the true meaning to each one.
My children are all home for the 2 week Christmas Vacation. Instead of the anxiousness I had felt every other year before this one, I feel very at peace and calm about this next transition. Maybe it’s because I’m finally resigning to the fact that drastic changes need to be made. Although it hurts like hell, it is necessary. Some people have a certain need to push people away to test whether they will still accept them. It’s been hard for me to constantly be reassuring and with the odds against me time is not a luxury I have. Creating that buffer that fear of getting too close seems to only create more distance mentally and emotionally with me now. I used to have so much patience for other people around me but now, I am just tired. I’m drained with all the schedules and fake smiles, it’s time to get a move on these plans and create the life I have always dreamed.