A follow up to my las Vlog about my skin reaction to my new drugs.
I called my doctor on Friday and explained all the problems with my skin, night sweats, etc. As part of the neurological team of specialists working with me, I have never experienced a doctor, let alone a specialist, drop everything to get on a 3-way call with his nurse and me to instruct me to reduce my meds immediately. It’s pretty scary since I’ve been on these meds for a year!
I was in the early stages of Stevens-Johnson syndrome and basically was chemically burning from the inside out and my organs were starting to shut down.. in a nutshell I was dying and days away from being hospitalized. The syndrome would’ve meant I would’ve been treated in the intensive care burn unit and would take months to recover! I describe the rash pain like when you scrape your knee, for example, it starts to heal but is tender to touch during the process. It’s the same feeling only the pain is from under the skin. It’s the weirdest thing. The human body is amazingly resilient and efficient. It was trying to get rid of all this chemical crap that was in my system.
The trick to this whole MS disease is the delicate balance of medication which changes and can easily be thrown out of whack. The hard part is that as soon as I feel good I don’t want that feeling to go away despite the side effects. I guess my balance has to be found in not enduring through the side effects. I’m not much of a complainer, but I’m gonna have to start writing some issues down.
Travel and events in the next year are already in full swing, contracts signed, staff to hire, etc. I need to be in medical healthy balance now more than ever! I hope this is the last hurdle I have to jump through.
I would say that’d be my Christmas miracle this year. Being with my whole family for the holidays has been awesome despite my medical scare. My family has completely fallen into abundance. Being around friends who share the same core values, interests and enjoy a good game of cards or pool 🎱 has been so fun. I’ve seen a whole different side of Canada and I’m going to see even more in the new year. I will definitely share that here.
Hope everyone is having a great week! Stay healthy, listen to your gut feelings and always love yourself and your life! Take care my friends ❤️