A follow up to my las Vlog about my skin reaction to my new drugs.
I called my doctor on Friday and explained all the problems with my skin, night sweats, etc. As part of the neurological team of specialists working with me, I have never experienced a doctor, let alone a specialist, drop everything to get on a 3-way call with his nurse and me to instruct me to reduce my meds immediately. It’s pretty scary since I’ve been on these meds for a year!
I was in the early stages of Stevens-Johnson syndrome and basically was chemically burning from the inside out and my organs were starting to shut down.. in a nutshell I was dying and days away from being hospitalized. The syndrome would’ve meant I would’ve been treated in the intensive care burn unit and would take months to recover! I describe the rash pain like when you scrape your knee, for example, it starts to heal but is tender to touch during the process. It’s the same feeling only the pain is from under the skin. It’s the weirdest thing. The human body is amazingly resilient and efficient. It was trying to get rid of all this chemical crap that was in my system.
The trick to this whole MS disease is the delicate balance of medication which changes and can easily be thrown out of whack. The hard part is that as soon as I feel good I don’t want that feeling to go away despite the side effects. I guess my balance has to be found in not enduring through the side effects. I’m not much of a complainer, but I’m gonna have to start writing some issues down.
Travel and events in the next year are already in full swing, contracts signed, staff to hire, etc. I need to be in medical healthy balance now more than ever! I hope this is the last hurdle I have to jump through.
I would say that’d be my Christmas miracle this year. Being with my whole family for the holidays has been awesome despite my medical scare. My family has completely fallen into abundance. Being around friends who share the same core values, interests and enjoy a good game of cards or pool 🎱 has been so fun. I’ve seen a whole different side of Canada and I’m going to see even more in the new year. I will definitely share that here.
Hope everyone is having a great week! Stay healthy, listen to your gut feelings and always love yourself and your life! Take care my friends ❤️
It's the Civic Holiday weekend and it feels like the summer months passed by so fast! I blame most of this on the weirdest weather I've seen in years! It would rain so hard it sounded like hail against my windows, thunderstorms at least once a week followed by extreme heat where I could hardly breathe. Although, I'd rather have this weather than the upcoming winter months.
The back-to-school supplies and clothing are in all the stores, I can almost hear my bank account cry for my school shopping days that are just around the corner. It will be an emotional school year for me as my last little pterodactyl will be leaving the nest to go to school. So far, he knows his numbers up to 10 and backwards, but he refuses to sing the alphabet song lol. Thanks to the iPad he does know what the letters are, but he just doesn't like the song. I'm guessing that he thinks the song is dumb, he rolls his eyes every time I ask him to sing it.
Lately, my days are filled with doll orders and event planning. It's a truly exciting time for me. I have found what I love in all aspects of my life from the kids, social life and now my artistry. They often say that when your personal life is good everything else around is chaos. I am living proof that the saying is NOT true. We all need to find the balance in our own lives or things get harder and harder to do. It's like the universe makes some things in our lives difficult in order to accept something better in our lives. "Out with the old, in with the new" has a deeper meaning than we think. This whole year has unraveled many important life choices for me. My family relationships have been stronger now than ever, financial security is finally here, reuniting with my childhood best friend, maintaining deeper relationships with my friends from all over my online world and forming new amazing friendships who have cleared my mind and settled my soul.
Yes, you can have it all, yes abundance is attainable. If you want these things, you have to release everything that you know is holding you back. It will seem so difficult to let go, but it will be worth it and those difficult moments you are experiencing right now, will be in your distant past. Right when you're about to give up hope is when you have to gather up as much strength as you have to get through the rough moments. You will see your end goals, not when YOU want to see it, but when you're ready to accept it.
May was the craziest month of 2017, so far. 2 of my sons dislocated their shoulders, I had doctor and physio appointments top that with some rain and you get a beautiful disaster. It seemed that as soon as it was clear blue skies and bright sun, the weather would do a complete switch and it would be pouring rain and humid as hell. It has been a weird time of the year but I am not complaining. I’m too distracted by all the planning I have to do for next year.
The last 3 weeks i’ve been filling doll orders as well as planning for a big event in May of 2018. There’s so much to do and to tell you the truth, it kind of feels like I’m planning a huge elaborate wedding! NO I am NOT getting married lol. I remember when I was part of the Filipino Association as the Treasurer. I had to organize the bills and quotations as well as book the event facility. Mind you, it was a hell of lot easier because I had a large team of 8 people who took over a lot of the mundane work I didn’t have time for. Now, here I am with a team of 4 people trying to organize the whole thing.. from the decorations, entertainment and food.. it’s all me. There are packages to prepare, contests to plan… just as I am writing this I feel my brain throbbing with all the planning I have yet to do. I did manage to lock the date and facility down, but now my creative juices have to start kicking into full swing! I definitely need a bigger team.
As I look at all the upcoming appointments for my sons, follow up appointments for me, etc. The more I see sleepless nights in my horizon. I don’t mind though, with a 4 year old full of energy surrounding me during the day, the only time that works is when all the pterodactyls are snoring away. Does anyone else find more time to focus on detailed things at night? I feel like I’m not alone in this.
They say working from home is way harder than working outside the home, this is so true. It’s not like I can checkout and come back the next day to finish tasks. Every day I wake up and there’s a mountain of things to do; add in the event planning and boom a fulfilled evening is born. I love the quiet of night time working, but there are times where my procrastination takes over for a bit. I’m surprisingly way ahead of deadlines and while on this journey, I have met so many amazing people that have offered a helping hand. The world may be cynical but the balance is surrounding yourself with positive people who are excited to help you succeed. If it wasn’t for all my new found support and newly developing friendships all my preparations and planning wouldn’t be this fun.
Sometimes you get little reminders here and there that you are on the right path, every time I meet a new friend it solidifies that I have the support I need and I am finally on the road to success and true happiness. Summer is going to be fabulous and I can’t wait to share more of my adventures!
I hope you are all having a happy and positive day. I also hope that you choose happiness in whatever you are currently into. Yes you have to work hard, but you also have to play hard.. that’s what happiness is.
I finally got my phone upgraded and after numerous errors on my account with the cellphone company, I have a huge credit on my account and a new iPhone 5s. Now, I had to work for this important piece of gadgetry, it took almost a full week! Lesson learned: Always go to the bigger store locations, in my case the mall, customer service matters!
With new phone in hand with less than 10% charge I did do a bit of shopping…yes, I stopped at MAC… I only bought 3 things this time, so I did demonstrate some kind of restraint, although I DID only intend on buying 1 thing heehee I bought more Pro Longwear Concealer, a lip pencil in “Hip ‘n’ Happy” and an Amplified lipstick in “Chatterbox”. Just the names alone make me laugh because, well it kind of describes how I’ve been feeling lately.
After my spa retreat, I had a lot of time to just not think and completely relax. I also decided to try some of the AVEDA products they were selling there, I loved the natural scents in that spa. I’ve seen these spas around for many years, but as goes life, some things are just more important at the time. I bought two kinds of skin care kits, one is “enbrightenment” the other is “tourmaline charged”. Every year during the weather change, my skin decides to be a pain in the ass, so I’m trying to be more proactive this year. This ol’ gal isn’t getting any younger… these were some pricey products so I’m going to do a full review on them and let you know how it goes.
Overall, it’s been a great week…yes I’m knocking on everything made of wood! 😉
I’ve been showing my Lhasa Apso for over 6 years earning his Canadian Championship while he was still a young puppy. The show ring was such a great experience and I am still an active member of the Lhasa Apso Association of Canada. Aside from the pretty groomed hair of my Lhasa he is very much a hardy lil guy, however, I’ve always been partial to the working dog breeds. I started doing research, several years ago, on different breeds and am looking to do some training in the Service Dog sector. I would like to eventually get into schutzhund training.
I found a 3yr old Doberman Pinscher that needed to be rehomed and I decided he was at the right age, skipping the puppy stage and getting right into his training. The original owners were a very sweet growing family so I understood what they were going through. They gave me his crate, his leash and dog bowls, which I wasn’t expecting. My boys already adore him and he has been really gentle and extremely obedient.
He’s my new huge cuddle toy! 🙂