Whoa! That was close!

A follow up to my las Vlog about my skin reaction to my new drugs.

I called my doctor on Friday and explained all the problems with my skin, night sweats, etc. As part of the neurological team of specialists working with me, I have never experienced a doctor, let alone a specialist, drop everything to get on a 3-way call with his nurse and me to instruct me to reduce my meds immediately. It’s pretty scary since I’ve been on these meds for a year!

I was in the early stages of Stevens-Johnson syndrome and basically was chemically burning from the inside out and my organs were starting to shut down.. in a nutshell I was dying and days away from being hospitalized. The syndrome would’ve meant I would’ve been treated in the intensive care burn unit and would take months to recover! I describe the rash pain like when you scrape your knee, for example, it starts to heal but is tender to touch during the process. It’s the same feeling only the pain is from under the skin. It’s the weirdest thing. The human body is amazingly resilient and efficient. It was trying to get rid of all this chemical crap that was in my system.

The trick to this whole MS disease is the delicate balance of medication which changes and can easily be thrown out of whack. The hard part is that as soon as I feel good I don’t want that feeling to go away despite the side effects. I guess my balance has to be found in not enduring through the side effects. I’m not much of a complainer, but I’m gonna have to start writing some issues down.

Travel and events in the next year are already in full swing, contracts signed, staff to hire, etc. I need to be in medical healthy balance now more than ever! I hope this is the last hurdle I have to jump through.

I would say that’d be my Christmas miracle this year. Being with my whole family for the holidays has been awesome despite my medical scare. My family has completely fallen into abundance. Being around friends who share the same core values, interests and enjoy a good game of cards or pool 🎱 has been so fun. I’ve seen a whole different side of Canada and I’m going to see even more in the new year. I will definitely share that here.

Hope everyone is having a great week! Stay healthy, listen to your gut feelings and always love yourself and your life! Take care my friends ❤️

SS

Advertisements

Therapy for healing

The first time I saw a reborn doll I instantly fell in love. As a doll lover I was so intrigued at how artists could express their own vision for each doll kit. Here’s my story:

In 2010, my whole world crashed, I went into the hospital expecting a quick fix instead, I was admitted immediately and fought for my life for 5 weeks away from all my family and friends. After those long weeks of not knowing, I was finally diagnosed with Multiple Sclerosis. That wasn’t the worst part, my neurologists, specialists and physicians informed me that I was no longer able to return to work, I had physical limitations, mental limitations and I would only get worse… oh, and that there’s no cure.

As a mother of 6 children, a wife, a sister and a daughter; giving up was not even a thought in my mind. However, I also knew I was going to go bananas if I didn’t have anything to do during the times when I would be bedridden. That’s when I thought about the reborn doll that my mother in law showed me. I, admittedly, became obsessive over every bit of the reborn doll process. I watched documentaries, read articles and spent hours self teaching, practicing painting and hair rooting. Working on reborn dolls became, and still is, my therapy.

I introduced the world of reborning dolls to my friend in New York. She loved my dolls so much and was so intrigued by them I decided to send her 2 of my reborn dolls, 1 for her and 1 for her mother who suffers from dementia. I knew about the therapy values of these dolls but nothing prepared me for the video chat from my friend showing me her mother’s reactions. Her eyes lit up and to this day, she holds and changes her babydoll every day. It was transforming for me.

A few months later, I was contacted by many who were curious about the dolls. One woman in particular reached out to me about her story and how she suffers from PTSD. We developed a bond and I put all me heart into a doll for her. Once her babydoll arrived, she sent me pictures of her family holding the doll and they were all crying with happiness, yes that included her husband. My husband and I were moved to tears. In that moment I knew the power of healing that these dolls have. My therapy can now help others and that is my goal for as long as I can create these works of art.

The first time I stepped into MacPherson’s I was speechless. It is an artist’s and doll collector’s dream! On my first visit I was lucky enough to have met Brenda. She is one of the most positive people I have ever met and her staff is equally friendly and sweet. As an artist, being able to physically look at and touch the different kits is invaluable to my reborning process.

I look forward to any chance I get to visit the store in St Marys which is only a 45 minutes away from my city.

Dear artists, this is a remarkable community and with the help and encouragement from the MacPherson’s staff, you can go through your own processes with ease. You will always be welcomed with open arms.

MacPherson’s always signs off with a “Have a beautiful day” and every time I visit, I do indeed have a beautiful day.

Thank you, Brenda and your wonderful staff for all your support for me and many other reborn artists, you are all beautiful inside and out.

The iPhone game

I recently purchased an iPhone 7 and I absolutely love it! The size, the weight, the features etc. I agonized over whether I should get it as soon as it was launched. I finally had my chance to upgrade to the 7 and I have no regrets.

Now, the annual iPhone has arrived. This version… iPhone 8.

As a gadget lover I love following the technology trends and watching how far we’ve come. From Bluetooth connections to drones, green screens to flat screens we’ve seen all the developments. Of course I was excited to see what Apple had to offer with the iPhone 8.

Hmmm…

I read all the specs and watched the forever genius ads and videos about the iPhone 8, but I didn’t expect the newest development Apple had to offer was made of glass!! What the..? This took me back to the iPhone 4 when the glass would crack on both the front and the back of the phones if dropped. Why, Apple? Why?! I celebrated the fact that a phone case is optional but now I look at the future of iPhones and I’m confused as to why such advanced phone technology is contained in glass. This is such a disappointment. I’m sure the bells and whistles are amazing, however if it’s housed in glass how could that technology be protected without a case? It just seems odd that the engineers picked this kind of packaging. It just doesn’t make sense.

I don’t see the iPhone 8 or the X in my future. The seduction of the camera advancements almost had me, but the glass design totally lost me.

Who knows? I may change my mind after a few demos and unboxings or I may jump off the iPhone bus. For now, I’ll be cuddling my iPhone 7 doing selfies, making videos, running my businesses and playing on social media for as long as iOS allows.

*sighs

SS

My Happy Place

I’ve been going to my “Happy Place” almost every weekend and I fall more and more in love with it. It’s one thing to support my art, but it’s another thing to receive the equal, if not more, support I have had lately.

My dolls are on display at MacPherson Arts & Crafts and I’m so excited!

I can’t explain how happy I’ve been too! My customers have given me amazing feedback and it’s such a gratuitous feeling to know that my art is helping people.

I’ve also seen many new artists’ work and children to adults are very intrigued by what I do. Yes, I am excited about the talent that has emerged from the love of baby dolls. As a Canadian woman, the joy of being able to go to a physical store that is the largest brick and mortar store in North America is something to be proud of. Every time I go to it I feel like a kid in a candy store!

I can look at any doll kit, supplies, clothes, etc all in one day. In this world of online shopping it’s such a relief that it is possible to shop and physically know what I’m buying. Since I’m very impatient it also makes getting the things I need instantly. I don’t have to wait for my order and stalk my tracking numbers.

It’s nice to know that my Happy Place is just around the corner.

I’ve made some vlogs lately so check them out on my YouTube channel so you can see the what the store looks like.

I love it so much!

Vlog #15 Doll Central

Weekend fun

As most know, I’m a Foodie. I love all kinds of food, especially cake.

I went out to a buffet dinner over the weekend and I feel like I’m still full from it. The Mandarin restaurant is well known in my city so when they opened up a second location closer to my house I was super excited.

I walked in and everything from the food to the decorations was breathtaking.

I can promise you I will be coming back here often!

SS

🇨🇦CANADA DAY🇨🇦

What a fantastic celebration for my beautiful country!  I’ve been reuniting with family and solidifying our bonds all day!

I’ve had weeks of excitement watching my fellow Canadians decorating their homes, cars and clothing with our beautiful red and white colours. This is the one day that I wanted to be filled with love and laughter and it came true.

Canada has given my family so much opportunity.  From the Philippines to Canada my family was welcomed despite the ignorance of racism and the uphill climb to success.  Being born and raised here,  I have learned so much and I continue to learn more about Canada each day.  I am a proud Canadian living in the best country in the world.  The best part of living here is being surrounded by so many cultures and traditions from all over the world united in one country.  Canada is best described in our own anthem. If you ever get a chance come on up here and enjoy us. We work hard and play harder 😊

Canadian Anthem

O Canada, our home and native land

True patriot love, in all thy sons command 

With glowing hearts we see thee rise

The True North strong and free

From far and wide, O Canada, we stand on guard for thee

God keep our land, glorious and free

O Canada, we stand on guard for thee 

O Canada we stand on guard for thee 

🇨🇦🇨🇦🇨🇦🇨🇦🇨🇦🇨🇦🇨🇦🇨🇦🇨🇦🇨🇦🇨🇦🇨🇦🇨🇦

MS and Me

I was diagnosed with Multiple Sclerosis 7 years ago and I’ve come to understand my disease more and more each day.  It’s much like riding a bike or driving, I remember how to do all those things regardless of how long it’s been since you tried riding each.  MS is constantly called the “Monster” for good reason.  There is no cure for MS and it leaves permanent damage everywhere it travels.

I’ll be going over the disease in a self-documentation of what my symptoms are and the various treatments that I have been trying over the years.  I’m still learning more and more about my disease as well as being aware of how these symptoms have effected myself physically, emotionally and mentally.

I hope you enjoy my MS and Me serious.

I will post the video on my YouTube channel under: StilettoSupermom

Off we go…..

MS and Me Vlog Intro

MS and Me Vlog 1